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Foundation for Prader-Willi Research - Chief Executive Officer

Virtual, US

Job Description

Witt/Kieffer is thrilled to launch a Chief Executive Officer search with the Foundation for Prader-Willi Research. This foundation was established in 2003 by a small group of parents who saw the need to foster research that would help their children with Prader-Willi Syndrome (PWS) lead healthier and more fulfilling lives. Today, FPWR is composed of hundreds of parents, family members, researchers, and others interested in addressing the many issues related to PWS, including childhood obesity, developmental delays and psychiatric disorders. The mission of FPWR is to eliminate the challenges of Prader-Willi Syndrome through the advancement of research and therapeutic development.

As FPWR has grown in size, complexity and financial requirements, the need for proven business leadership and the urgency in raising the necessary capital to aggressively drive the research agenda are at an all-time high. The Board has decided to launch a national search to find a Chief Executive Officer who can skillfully position and lead the Foundation through this crucial next phase. The CEO will need to identify promising funding sources with the capacity, passion and vision to support FPWR’s research strategy, including a target of $27M over the next five years.

FPWR utilizes a virtual workforce and finding a leader who understands how to hold virtual teams accountable and drive a positive, collaborative culture across such an organization is important. Skilled financial guidance as well as the ability to use technology to effectively connect and leverage the resources of the Foundation and strategically collaborate with an exceptional research team will be key responsibilities. As breakthroughs in genetics and other areas of study create new opportunities to address PWS, the Foundation is positioned ideally to guide and catalyze a new wave of translational research. Communicating this focused research effort, as well as the grant program, to the right audiences and forging the appropriate partnerships to encourage and engage the scientific community and business partners will be another point of emphasis for the CEO.

This leader will have demonstrated experience in successfully building or scaling early stage businesses or organizations with research as a core element/competency. Strategic business planning and follow-through are needed, along with the ability to adapt and leverage emerging opportunities. Attention to culture, community and mission must be a continual focus. This leader will bring experience developing and implementing strategic plans, performance measurements and management controls, while building trust and credibility across a broad stakeholder group.

Nominations and resumes should be submitted in confidence to Foundation for Prader-Willi Research CEO search team of Rachel Polhemus and John Fazekas at:

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